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~ What ships are for…

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Tag Archives: transition

A Sense of Adventure

06 Saturday Dec 2014

Posted by Ann Kilter in Autism

≈ 2 Comments

Tags

adventure, asperger's, autism, cooking, transition, travel

Will let us know, with a little glee in his voice, that he is going to have the burden of going to Tampa next week. In the winter, no less. For business. Sense of humor, that boy. I admit I feel a little uneasiness over his travels. Patty says he should make sure he gets to see the ocean on this trip.

In other news, Will told me this on Tuesday that he is going to have turkey meat for sandwiches for the next several weeks. At 9:30 at night, he said he would be taking the the turkey out of the oven. I guess helping me with my turkey adventure twice, gave him some practice. When Will moved away from home two and a half years ago, I couldn’t have imagined him making homemade tortilla shells, let alone a turkey. He takes on cooking projects many young men his age wouldn’t even think of. His idea of a Christmas present is a good sized bottle of sage, thyme, and powdered garlic.

Creative and not afraid to try something new.

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Health – a Motivation for Transition

05 Sunday Oct 2014

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability

≈ 5 Comments

Tags

asperger's, autism, health problems, special needs, transition

There’s nothing quite like a health crisis to remind us why we are working toward transition for our kids.

On Wednesday, I took Ralph to the ER to have IV fluids administered for acute renal failure (or acute kidney injury).

When I took him to the doctor, he was found to have lost 29 pounds in the space of a month, between doctors’ appointments. The doctor said that sent Ralph for labs, and depending on the results, might send him to the ER for IV fluids.

There was no call, so I hoped/assumed that the tests had been okay. So I went back work for the afternoon and then took Mary to her computer certification class. Shortly after we arrived home after her class, Ralph received a phone call from the doctor telling him to go to the ER because he was in acute renal failure. We spent the next four hours at the ER. The doctor there said that it was kidney injury rather than renal failure, and we were allowed to go home.

Ralph is still very weak and is wondering if he should retire from his physically demanding job. If that happens, we will need to move from our four bedroom house to something smaller with fewer maintenance demands and less cost.  We have been talking about this for over a year, but this event has brought more urgency to the discussion.

Our youngest daughter will probably move away from home within the year. However, because Mary will probably live with us for at least a little while, we need a two bedroom apartment or condo. We could move to a senior apartment complex if Mary were living on her own. We suggested a few weeks ago that she might want to live in the same complex, or if she gets a full time job, maybe in the same condo community. Always, I my urge to take care of her comes to the fore.

But at some point, Mary will need to live independently. Or perhaps with her brother. I’ve known a few people with lower IQs who lived on their own.

Ralph probably will recover fully. However, like many parents of special children, we have to think about the future for our oldest daughter. A friend at work said to me, “Why are you so concerned about Mary living on her own? Can’t she live with you?”

“Yes, she can live with us for as long as she can, but eventually, she will need live independently.”

 

 

 

Kilter Family Update

28 Thursday Aug 2014

Posted by Ann Kilter in Uncategorized

≈ 4 Comments

Tags

change, independence, starting school, transition

This is the first fall since 1991 that the Kilter family does not have someone starting school. 23 years since school started for our family. And now, it’s over for us.

Mary is in a 15 week training program, but it started in July and will end in a certification test and possible job in a government call center. And Patty will be a teacher’s assistant at the college she graduated from this last spring. But she is not taking classes;she will be grading tests and taking attendance.

But no one is starting a program leading to a degree this year. No one. It feels foreign. Strange. Odd. I feel at loose ends.

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No school buses. Although the only school buses our kids rode were special education buses. We didn’t have to deal with school bus woes.

buses

No tuition payments. Why am I not more flush with funds? Still recovering I think.

Wow. Just wow. Looks like this update is mostly about the end of one chapter, and the beginning of several others – the kids are going off in their own directions, and we, Ralph and I, have to think about our next chapter.

In other news, Will made it back from Tennessee just fine.

 

 

When A Door Seems to Be Closing…

16 Wednesday Jul 2014

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability, Independence, Transition issues

≈ 1 Comment

Tags

asperger's, autism, job, opportunity, transition, When one door closes

Try some other doors. One of them might be unlocked.

Mary has been trying for since 2010 to find a job worthy of her degree in accounting. The door has been closing due to some seemingly significant barriers: being unable to drive, learning disability, autism, etc.

About three months ago, she told me that she was ready to try something else. (See Mary’s Wishes). She went to Goodwill and took a test for a new training program to qualify for a computer training program. She qualified, and was to start when she found out that the trainer had moved on to another job. It took three months for them to hire another teacher. Finally, she will be starting the program in about ten days. Two nights a week. The Kilter taxi service will be starting up again, but we can’t pass up this opportunity. Perhaps if we jiggle the door knob, another door will open. 🙂

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Mary’s Wishes

07 Monday Apr 2014

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, high functioning autism, Independence, Transition issues

≈ 20 Comments

Tags

independence, independent living, transition

The receptionist at the law firm where I work told me that she will have no children at home within the next six months. Her daughter with the baby is interviewing for special housing, her son is moving in with friends in May, and her youngest is moving into her own apartment to attend college in August. What a change that will be for her and her husband. The empty nest may come upon Ralph and me sooner than I think. Will is already gone. Patty plans to leave in a year or so after graduation this spring to go on to graduate school. And Mary wishes to leave as well.

On Saturday, Mary went grocery shopping with me. Usually, when I drag one of the girls out to the grocery store, we also go out to eat. I started taking my kids out individually for lunch or breakfast on a rotating basis when they were in their early teens, so that we could talk without the other ones butting in. Both Will and Patty were talkers. At first, getting Mary to carry on a conversation was halting, difficult. She would not look at me. Her voice was so soft, I could barely hear her.

At Steak and Shake, Mary informed me that she was looking forward to moving to her own apartment. I said that she would need an apartment that was within a short distance to a bus stop and shopping. I suggested that she might want to live with her brother, Will. She shook her head. She doesn’t want to live with Will, she wants to do what Will has done, have her own apartment and her own life.

In order to move away, she said she needs to get a steady job. Then she told me that she was going to an interview at Goodwill on Monday. They have a training program for a high tech call center. Surprise! I don’t know if she has the ability to learn C++, but she does keep the computers running around here.

After we came home, I told Ralph what Mary had said. I started looking on the computer at apartments in the area. Talking about where Mary would shop, how she would get around and how she would get to work. He said, “Wait, one step at a time. You never know, she might get married.”

“I can’t wait,” I said. “How will she get groceries, go to the dentist, go to the doctor. We have to think about these things. Plan for her.” But this isn’t my job or my place. I have to let go to the extent that we can.

The truth is, Mary is making plans, taking steps to make her wishes come true. She has been planning for years. Even though she can’t drive, she is going to ride the bus to her interview tomorrow and back. She can get around.

Mary can take care of herself, in many ways better than her brother could when he moved into his apartment. She does laundry, cleans house, and cooks. She has accepted the fact that she cannot drive, so she plans to get around on her own. We have insisted that she try to find a job which is easily reachable by bus. As tempting as it is to say we would drive her to job inaccessible by bus, her independence is dependent on the bus.

Living Room

Above is a picture of Will’s apartment after he moved in. To say his furniture was sparse is an understatement. But Mary has her own bed, a recliner, desk, office chair, TV, bookcases. I would encourage her to buy dressers, lamps, etc.

Mary is vulnerable, and that is one of my fears. But I must let her go at some point, whether it is to supported living or totally independent living.

A year or two ago, I dreamed that Mary had moved into her own apartment, and I walked through her apartment looking at her cupboards to make sure she had enough food. I opened the refrigerator door to peak in, to see how the food supply was. I went through the same process with Will after he moved. After a while, I stopped prying into his cupboards, except now to ask where he keeps the sugar or coffee filters.

My wishes are that she would be safe, and able to take care of herself. Mary’s wishes are to be independent, have a job, make her own life. I need to step back and let her live her life. To leave the harbor, so to speak. That is what ships are for, even for Mary.

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