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annkilter

Tag Archives: support

Support needed, freely given.

13 Monday Jul 2015

Posted by Ann Kilter in Autism

≈ Leave a comment

Tags

accident, asperger's, autism, Comfort, meltdown, new job, stress, support

“Mom, I had an accident,” Will’s distress came loud and clear through my car speaker as I drove home from work Friday. “What happened? Are you hurt?”

“No. But my car is really damaged on both sides. And the couple who hit me, their old truck is old, but they can’t afford to replace their truck. I kept saying I was sorry.”

“It’s my fault, Mom. I forgot to look both ways and pulled out in front of them. I wish I had just gone home instead of going to the store to buy a new phone”

“Oh Will, at least you weren’t hurt. Was any one else hurt?”

“They were checking out the older lady. She might be hurt a little. … I have to hang up. The policeman is here.”

I could hear the policeman asking for Will’s proof of insurance and registration.

My phone rang a few minutes later.”

“Mom, I can’t find my registration. It’s not here, not here, not here, not here,” he said shuffling through papers in his glove compartment. “Oh no, oh no, oh no,” panic was rising.

“Will, other people have lost their registration. It’ll be alright.” I hoped. “Just tell the policeman you can’t find it, but you knew it was there the last time you looked.”

“Okay. I have to hang up. He’s back.”

The phone went dead. I had come in the house during the conversation, and I sat in my chair, praying. I prayed that Will would not have a meltdown. His autism might become especially troublesome at a time like this. I prayed that he wouldn’t be overcome by panic.

Ralph walked in the door a few minutes later with Mary. He had picked her up from work.

“Will had an accident.”

“Oh no. Is he all right?”

“Yes. But his car is very damaged. And he’s in distress.”

My phone rang again. “Mom, it was alright. The policeman was able to find my registration on his computer. Now I have to wait for the tow truck to come.”

“How are you going to get home.”

“They are going to give me a ride.”

“Who is going to give you a ride.”

“The tow truck driver or the policeman. I’ll call you when I get home.”

“When you get home, call your insurance company right away. They will tell you what to do next.”

Will called us after about an hour. He told us that the insurance company was setting up an adjuster to come out an look at the car. They gave him the choice of where to have it fixed with one of their contractors. And they were arranging for him to have a rental.

“Would you like us to come and visit you?”

“Yes.”

“Do you want us to come tonight or tomorrow.”

“Tomorrow is okay. I don’t want you to come over tonight.”

“We will, if you need us to.”

“No, I’ll be okay tonight.”

“Have you eaten yet?”

“No.”

“You need to eat something.”

“Okay, I will. ”

“See you tomorrow. I’ll bring some food to cook for you.”

The next day, Patty and I drove over to his house, took him shopping for food. We visited him. Let him talk it out. He didn’t eat the night before. I bought him lunch at McDonald’s, and he told me he hadn’t eaten much that morning either. He was too upset. But he felt much better after eating.

I made chicken and dumplings last night, and crockpot roast pork today.

“I’m so glad you came,” he said today. “But I still can’t stop thinking about about it. What if the company I am going to work for decides not to hire me? They are going to do a background check.”

“I don’t think they are going to use this not to hire you. Besides, it probably won’t appear on your record for a while.”

“Would you like your Dad to come over today? I’ll go home and send him back. He can help you get around and get everything arranged. He can drive you to work tomorrow so you don’t have to think about that.”

“Okay. I still wish I hadn’t decided to go to the store to buy that phone. If only I had gone straight home.”

“Will, it’s normal to feel that way. In a few weeks, you’ll feel better, but you’ll still think about it for a while. When I had my accident, I did the same thing. Running over it in my mind. But you have to stop yourself from thinking about it, distract yourself as much as you can.”

“I haven’t been feeling good. My throat has felt funny and I’ve had a headache this week.”

“That’s anxiety, Will. You’ve been dealing with these interviews this week, and made a big decision to leave your current job and go on to another job. That’s a big deal, even though it’s a good event”

Will had four interviews this week, received a job offer, and accepted it. A lot more money, and bonuses. In three years, Will has obtained a valuable skill set in WorkDay. He’s been contacted by numerous recruiters this year. He decided to send his resume directly to the companies the recruiters were trying to refer him to. He’s had interviews with three different companies this week. One of them hired him.

So on Monday, he is going to be messing with this car business, and giving his two week notice to his current employer. They called him into a meeting last week and told him they were trying to get him a raise and a remote position so he could work from home. They were too late.

“You’ll have to push on Will. It’s a risk, but they wouldn’t have hired you if they didn’t need your skills.”

“What if I can’t do it?”

“I’ll be praying for you, and so will your Dad.”

When I got home from Will’s I said to Ralph, “He’s looking pretty thin. I don’t think he’s been eating right. Patty said he’s been eating poptarts for breakfast.” Patty stayed with him for a week this summer. Cook for him when you get there.”

After Ralph arrived, Patty called to ask what I had done with the garbage bags. “Oh, I found them,” and she hung up. Ralph and Patty were cleaning his house.

Sometimes our kids need extra support.

 

Emotional Meltdowns

30 Sunday Jun 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, Support

≈ 14 Comments

Tags

ASD, asperger's, autism, crisis, support

Will called tonight because he was very upset. His Wi-fi thing-a-ma-gig broke down. This component is a necessity because part of his work at the computer corporation is done at home. One of the projects he is working on is going “live” this weekend. So it is an understandable crisis.

He needed to call home to help him calm down and talk through his options. Continue reading →

The Village

01 Saturday Dec 2012

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability, faith, high functioning autism, Independence, Miracles, Support, Transition issues

≈ 2 Comments

Tags

asperger's, autism, high functioning autism, support, Village

Hillary Clinton famously said, “It takes a village to raise a child.”   I agreed with her then, and agree with her more as I look back at our journey. It is even more true when raising children with disabilities.

Here is a partial list of our village; I will be adding to it throughout the day:

Our piano teacher who taught piano to our kids for 10 years, starting with Will. I asked her if she would be willing to try to teach Will, even though he had been placed in special education and could not yet read at seven years of age. She said yes. After a year of teaching piano with a non-reader book (there are such things), she told me that he had an aptitude for music. Then we added Mary for the purpose of strengthening her hands and improving fine motor skills. Then we added Patty because she wanted to do what her brother and sister were doing.

The 2nd grade teacher who after a year of teaching Will, asked that he be placed in her class for 3rd grade (she moved up a grade) because she thought she had made real progress with him and could make even more progress the next year. This was the year he learned to read, and his reading exploded up the testing chart. By the end of 4th grade he was reading at an 11th grade level.

The Social worker who suggested that Will could possibly be in band in the sixth grade, in part because he had had four years of piano lessons by then and understood music. He prepared the band teacher for what he should expect.

The teacher consultant who was instrumental in placing Will in the gifted program in our district  because he was clearly gifted, despite his autistic tendencies which appeared to outsiders to be shocking immaturity.

The band teacher who stuck with Will for 7 years from middle school through his senior year in high school and, as Will gave Mr. G credit in his Valedictorian address, for teaching him to work hard on his music and always do his best.

The youth pastor who cared for our kids and included them in many activities, including mission trips to Tennessee to prepare a camp for needy children for the summer. The youth sponsors who mentored our children.

My sister who babysat our children for weekends at a time twice year so that Ralph and I could get time away. She understood that they needed a sitter well into their teen years.

My mother and father who bragged about our kids to anyone who would listen.

The special ed director at Mary’s new district for the regional autism program who suggested that Mary be signed up for the Reading for the Blind program, because he sensed that although she could not read, she could understand narrative and that would be prepare her for reading in the future.

The teacher’s aid who saved Mary from choking, and who also helped her develop a reading “bank” of words that she could recognize by sight. (Mary could not learn by phonics due to severe auditory processing deficits and speech impairments). This required tedious repetition and perseverance. But by the end of 7th grade, Mary had a word bank of 180 words. By the end of 8th grade, she had a word bank of 600 meaningful words. In 9th grade, Mary read The Lord of the Rings, with the help of tapes, and the books themselves. After that, Mary began checking books in that genre out of the library, reading 30 or 40 books a year.

Respite

13 Friday Jan 2012

Posted by Ann Kilter in Autism, Support, Thankful

≈ 1 Comment

Tags

autism, babysitting, respite, support

In about an hour I am going to start gathering my stuff for the Quilt Retreat. I have been attending this quilt retreat with the same group of women for the past 16 years, missing only a few of them. This is a refreshing respite from everything, including technology. We watch chick flicks on DVD, but we try to cut ourselves off from the news, and regular TV. We quilt, knit, crochet, tat, but mostly quilt all weekend. And we talk, talk, talk. It’s wonderful. My loving husband has made this possible.

Respite is so needed for caregivers. When we would hear recommendations on the radio or from the pulpit that it was important to have a date night once a week, we would laugh (inwardly in church). Some years we had a date night twice a year. When our kids were in early elementary school, it was very hard to find the right babysitter. It had to be someone who could handle the chaos with understanding. “Watching” them was demanding. Our kids also needed babysitting far longer than other kids. The cost was high. A night or a weekend away, well…we couldn’t think about that.

When our kids were in late elementary school, Thresholds came into our life. This agency sent therapists to visit our home once a month and gave us advice on teaching activities of daily living. They gave us special table knife so that my son could learn how to cut his own waffles, for instance. They also had a respite program which helped with the expense of babysitting. So my sister drove four and a half hours to take care of our kids twice a year while we went to stay in a nearby hotel for a weekend. Thresholds recommended a mother of an adult handicapped daughter for short-term babysitting, so that we could have a date night once a month. We enjoyed the quiet. We talked to each other without interruption. We went out to eat and didn’t have to supervise. These respites were a relief. A relief.

We were blessed by them.

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