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Tag Archives: special needs

Health – a Motivation for Transition

05 Sunday Oct 2014

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability

≈ 5 Comments

Tags

asperger's, autism, health problems, special needs, transition

There’s nothing quite like a health crisis to remind us why we are working toward transition for our kids.

On Wednesday, I took Ralph to the ER to have IV fluids administered for acute renal failure (or acute kidney injury).

When I took him to the doctor, he was found to have lost 29 pounds in the space of a month, between doctors’ appointments. The doctor said that sent Ralph for labs, and depending on the results, might send him to the ER for IV fluids.

There was no call, so I hoped/assumed that the tests had been okay. So I went back work for the afternoon and then took Mary to her computer certification class. Shortly after we arrived home after her class, Ralph received a phone call from the doctor telling him to go to the ER because he was in acute renal failure. We spent the next four hours at the ER. The doctor there said that it was kidney injury rather than renal failure, and we were allowed to go home.

Ralph is still very weak and is wondering if he should retire from his physically demanding job. If that happens, we will need to move from our four bedroom house to something smaller with fewer maintenance demands and less cost.  We have been talking about this for over a year, but this event has brought more urgency to the discussion.

Our youngest daughter will probably move away from home within the year. However, because Mary will probably live with us for at least a little while, we need a two bedroom apartment or condo. We could move to a senior apartment complex if Mary were living on her own. We suggested a few weeks ago that she might want to live in the same complex, or if she gets a full time job, maybe in the same condo community. Always, I my urge to take care of her comes to the fore.

But at some point, Mary will need to live independently. Or perhaps with her brother. I’ve known a few people with lower IQs who lived on their own.

Ralph probably will recover fully. However, like many parents of special children, we have to think about the future for our oldest daughter. A friend at work said to me, “Why are you so concerned about Mary living on her own? Can’t she live with you?”

“Yes, she can live with us for as long as she can, but eventually, she will need live independently.”

 

 

 

The Last Graduation

18 Sunday May 2014

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism

≈ 6 Comments

Tags

achievement, asperger's, autism, college graduation, special needs

Ralph and I have been driving back and forth to colleges since September 2001.

First, I went back to school to become a legal secretary, graduating in 2004 (25 years after my first bachelor’s degree in English/Linguistics). There was a one-year break in 2004-2005, then Mary began her studies at the local community college in accounting, and went on to a local business college for her bachelor’s degree. Two years later, her brother Will began his studies in computer information technology at a local Christian college. Two years after that, Patty began her college career. At one point, Ralph and I were driving three kids to and from three different colleges five days a week. The Kilter college taxi service has been in operation for the last eight academic years (I don’t count my own years in college for the taxi service).

Two weeks ago, the Kilter college taxi service ceased operation after our youngest daughter, Patty, graduated with a bachelor’s degree in history and minor in economics,  magna cum laude. She approached college differently than her siblings. No accommodations were requested or needed. She is quirky,  creative,  and laughs out loud during her classes as she does at home. She thinks things through and connects the dots on her own. She challenged her professors and didn’t let them get away with easy answers. She often prepared group study guides for her classes and invited her classmates to use them for tests. Of course,  the study guides helped her on the exams even more. In her last year and a half,  she was the teacher’s Assistant for one of her professors. Graduation weekend, she spent 30 hours in her room,  grading exams.

After commencement,  I was able to meet her professors at this small private school. I took pictures of her together with them.

Then one of her professors came up to me and whispered, “Thank you for bringing her to us.”

And that is what I did. First, I convinced her to choose this college. Then I brought her to her classes five days a week for four years. Before and after work.

The valedictorian of her class talked about the opportunity cost of choices made. Ralph and I made the choice to spend ourselves in the effort of getting our two kids with autism and the one without through college to their bachelor’s degrees. We could have chosen to let them out into the world to work or do college totally on their own. My sister called it “an enormous effort.” Our effort involved transportation on a daily basis, encouragement,  filling out financial aid applications,  paying some of their tuition,  giving some times unwanted advice,  intervening with professors who had trouble understanding and implementing accommodations. But this goal was a priority above any other. Some of the costs were fewer friendships, no vacations, rest and relaxation, etc. In our minds, it has been worth the price paid.

Some might say we did too much for them, took on too many of the responsibilities that should have been theirs. After all, college is the time when children should be spreading their wings. I believe that each parent needs to judge what what each child needs individually. Mary needed more assistance, Will needed less. Their autism did necessitate more help. However, as they adjusted to college, they needed our help less and less. Other than transportation, help with tuition, and stops at McDonald’s for lattes and sausage McMuffins, Patty fiercely resisted any assistance from us. The time for spreading wings for our family, has been after college.

Friends, colleagues, and my psychiatrist have congratulated me on my remarkable accomplishment. However, as I keep pointing out, without our kids’ intense cooperation and effort, none of this would have happened. They were the ones who worked so hard in high school so that they would have scholarships to help pay for college. They were the ones who EARNED their bachelor’s degrees. Their accomplishments have been way beyond all that we could have asked or imagined when they were all placed in special education during the 1991-1992 school year. We were simply their enablers.

We have attended four college commencements since 2008. Patty’s was the sweetest of all.

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Handles, Wings, and the Special Needs Child.

29 Saturday Mar 2014

Posted by Ann Kilter in Transition issues

≈ 1 Comment

Tags

growing up, special needs, transition

Transition is the long term process of changing handles to wings for our children. Set this expectation in your mind: it will take longer, with many fits and starts. I recommend the post below by my writer, friend, G. Allen Barrett, poet, writer, and father. I so enjoy his sway with words. In each of our families, we share the experience of parenting special needs children.

G. Allen Barrett Poet. Writer.

4:40a.m. I heard “handles or wings.” Not audibly, but thoughts rattled and I carried my journal to the bathroom and wrote it down. My friend Peter Dehaan commented about my blog post on writing, the one about keeping paper and pen available while sleeping. He mentioned that sometimes a thought would arrive in the middle of the night and when he revisited it the next morning he was clueless as to why he wrote it down.

I imagined an angel with handles where wings would usually be found. Maybe my guardian angel could be easily moved. Just grab ahold matie, and take control.

Or maybe the angel is like a G.I. Joe I had when I was a child, the handles were where I would attach a parachute and throw him off the garage roof.

Maybe when God created angels he gave them a choice at the end of the…

View original post 153 more words

The Family Hero

15 Saturday Jun 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, faith, high functioning autism, Thankful

≈ Leave a comment

Tags

asperger's, autism, father, father's day, special needs

For Father’s Day

OLYMPUS DIGITAL CAMERA

Ralph, my husband and father of our children, is an unsung hero. Well, today I am writing his song of praise. Continue reading →

Steps toward independence – Miracle needed.

19 Saturday May 2012

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, diagnosis, Disability, high functioning autism, Independence, Miracles, Support, Tests, Transition issues

≈ 6 Comments

Tags

asperger's syndrome, autism, disability, independence, miracle, need, special needs

My older daughter Marie is having difficulty achieving the next steps toward independence.

It has been difficult to find a job…her handicap is more evident than her brother’s. Her learning disabilities, while much improved, hamper her. Spelling IS important. She may not be able to spell well, but she can write a decent paragraph. Maybe dictation would work for her. She is good with numbers. Very good. She loves accounting. (Boring, utterly boring, in my opinion.)

This next week she is going to have an on-the-road driving test to see if she is capable of learning to drive. We received her in-house evaluation and she still has some of the deficits that resulted in the prohibition of driving lessons three years ago. But those deficits have improved enough that she is going to be allowed to take the road test.

Her brother has moved 70 miles away for his new job. She said she would like to hunt for accounting work in his city because the busing system is so much better and there are more openings in her field. However, she needs to find out if she can take driving lessons. If she passes, she will need to stay home to be instructed in driving. If she fails, she can look for work in her brother’s city right away.

Inability to drive is a barrier to employment in America, where the cities are far apart and public transportation is inadequate except in the biggest cities. In our city, she makes the decision about whether to apply for work or send a resume based on whether the location is on the bus line. Many positions are in the suburbs where there is no bus service.

She has developed many skills in her quest for independence. She can cook, do laundry, clean, and hunt for work. She can ride the bus independently and she enjoys walking downtown and taking herself out to lunch or meeting me for lunch.

She needs a miracle. Waiting for the next step is difficult. It seems an insurmountable barrier, a wall to climb over. However, she has surprised us before and probably will again.

I am praying that she will be a blessing to those who hire her and that they will be glad that they hired her.

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