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Tag Archives: parenting

A Place of Refuge

26 Saturday Oct 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, high functioning autism, Independence, Transition issues

≈ 10 Comments

Tags

asperger, autism, coping, meltdown, parenting, Refuge

When we had the big meeting with all of Will’s teachers, therapists, and administrators before he entered the sixth grade (middle school in our district), his social worker suggested that Will should have a place of refuge at the middle school. This was his place where he could escape in order to calm himself down. In his case, we designated the Title One Room. He was allowed go in there and talk to the aide, read a book, work on his homework. Just repair himself. All of his teachers were in agreement, and it was written into his IEP.

What a good idea, I thought at the time. So at home, we designated a place of refuge for him. In our case, it was his room. We said, “You need to take refuge in your room to calm yourself down. Read a book. Look out the window. Would you like a snack to take with you? Listen to some music. When you are calmer, you can come out.” Sometimes after a little bit, Ralph or I would go to his room and talk with him. Other times, he would come back out on his own.

This was helpful for our family.

I think it mattered what we named it, too. Both to us and to Will. By calling it his place of refuge, it was communication to him that he was able to calm himself down, and we needed to calm ourselves down as well.

This was just one strategy for helping Will cope with his emotions. Later on, he didn’t need it as much and we developed additional strategies for coping.

calm

Evaluator in Chief

25 Thursday Jul 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, diagnosis, Tests

≈ 9 Comments

Tags

ASD, autism, Christmas program, evaluator, parenting

December 23, 1991 – an entry from my journals.

I went (to church) even though I was still sick, because I wanted to see my kids in the Christmas Program. And what I saw was a little upsetting. Instead of just enjoying my kids, I find myself constantly evaluating them – especially in comparison to other kids.

Mary was up there, she didn’t even try to sing the songs (of course she’s been gone and missed the practices). In addition to that she picked her nose. Isn’t that attractive? Will had his finger up his nose half the time, too.

But Will did not sing the songs. He kept pointing to the light in the globe and saying, above the other children’s singing, “There’s a light in there! A light in there!” And he kept turning around and around.

I am past the point where I think it’s cute. This behavior is beginning to worry me. Continue reading →

Like Father Like Son

30 Tuesday Apr 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, diagnosis, Disability, high functioning autism, Independence, Transition issues

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Tags

asperger's, autism, cooking, like father like son, parenting

During one of our weekly telephone conversations, Will told me that he was eating sausage and green beans. “See,” he said, “I am eating a vegetable.” And then he told me that the reason he didn’t eat many vegetables is because he cooks like Ralph cooks. When Will first moved away, Ralph spent some Saturdays at his apartment teaching Will how to cook Will’s favorite meals.

Ever since I went to work in 2004, Ralph has been cooking the majority of the weekday suppers. This is because 1) he knows how to cook and 2) he gets out of work at 2:00 p.m., whereas I usually work until 5:00 p.m. or later. Ralph pushed me to work full time, so I told him that if he wanted to eat before 8 p.m., he would have to cook.

Ralph’s repertoire of meals*** include spaghetti and garlic bread, chili mac, chicken nuggets and fries, breaded fish from the freezer and fries, meatballs with barbecue sauce and tater tots, sausage and green beans, tacos, pot roast with carrots and potatoes, turkey with stuffing, barbecue (made with ground hamburger) on a bun and tater tots, hotdogs and steak on the grill with french fries. Will told me that since Dad didn’t have many vegetables in his cooking, he didn’t either.

One of the nuggets of wisdom I managed to catch from the conferences, meetings, and self-education regarding autism when my kids were growing up was that our kids have autism, but they are also like their parents. They will have their parents traits. It was a reminder to think about that fact that their autistic traits were not everything.

So Will tends to learn along black and white lines, which in some ways is good for computer programming and calculus. His creativity seems to be along those lines as well.  I tend to think like that in terms of my work at a law office.

Patty told Will last night that her theology professor told her that she was a better student of theology than Will was (they went/are going to the same small Christian college). In part, this is because she brings her depth of understanding as a history major to the subject, along with her willingness to challenge her teacher on his positions. She is a conservative fundamentalist, in a truly historical Calvinist way of thinking. Ralph picks her up from college and they have highly entertaining (to them) discussions. Patty says he thinks deeply about these things. Ralph majored in Bible and pastoral studies in college.

Some characteristics our kids demonstrate have nothing to do with autism, and owe more to their parents’ traits.

***My meals include chicken and dumplings (carrots, onions, potatoes, corn), baked tilapia with rotini and a vegetable, salad, chicken nuggets and fries and a vegetable, baked pork tenderloin and rice and a vegetable, crockpot Boston Pork roast and rice and vegetables, etc. Sometimes when Ralph and I discuss what to have for supper, it is really a discussion about who is going to cook supper.

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