• About
  • My faith story
  • Whole30

annkilter

~ What ships are for…

annkilter

Tag Archives: New Year

Catching My Breath

02 Monday Jan 2017

Posted by Ann Kilter in Autism, cancer, Uncategorized

≈ 3 Comments

Tags

cancer, catching my breath, lavish vacation, myelofibrosis, New Year, provision, trusting God

For the third year in a row, I am taking a vacation during the first week in January. In January, I get a new supply of vacation days. This year, it’s four weeks, thank God. My husband has been ill since October 2014, when he had a tumor on his bowel that caused a total blockage. He had surgery, but recovery has been slow due to his other health conditions.  I have been his caregiver since then. He has been feeling relatively well the last year. He does some household chores and drives our daughter to work.

This summer he was diagnosed with bone marrow cancer. We have spent time going to University of Michigan to be evaluated for a bone marrow transplant. He doesn’t qualify due to his other health conditions, overall weakness, and struggle with malnutrition.

Since October 2014, I have spent most of my vacation time on appointments for him. So it may seem lavish for me to spend some of it on myself. Because that’s what this is. A break from work. A chance to regroup. To do some fun stuff like go to the theater and watch a movie, crochet, scrapbook, and organize our condo.

Last summer, after his diagnosis, we decided (we were led, really) to go ahead and help our 30-year-old daughter buy a condo with the idea that we would move in with her and pay rent to her. She had been paying rent to us for several years. She was enthusiastic about this idea. We started talking about it on July 3. She signed the mortgage papers on August 11 and we moved on August 20. Six weeks. We put our house on the market in October. We sold it in four days, and closed two weeks later. It has been an amazing how God’s hand was evident in this move. God’s people helped us move, and helped us throw away or give away more than half of our stuff. What a weight off of our shoulders.

Late summer, Ralph had to have two transfusions. This is a sign of his cancer progressing. However, his doctor has adjusted his chemo so that he stays just above transfusion level while controlling his platelet level to some extent. Too many transfusions and blood letting has to happen or medication to take down iron level. Two weeks ago, he had an abdominal CT scan to check for Crohn’s disease because of digestive issues that are robbing him of nutrition. No Crohn’s, but the radiologist did note that his liver had a small lesion. His GI doctor told him it was nothing to worry about. I asked his PCP to send me a copy of the test results. It notes that the lesion/liver should be watched for metastasis, and the PCP said he should have another test. I keep this information to myself. It may be nothing. But the fact that he has bone marrow cancer indicates it needs watching.

As I think about 2017, I wonder how soon chaos will enter our lives. Yet the thing that I must do is trust God. In the midst of our storm, He has been faithful to us. Faithful.

May you have a blessed new year!

Ann

Blessed is the man who trusts in the Lord,
And whose hope is the Lord.
8 For he shall be like a tree planted by the waters,
Which spreads out its roots by the river,
And will not fear[a] when heat comes;
But its leaf will be green,
And will not be anxious in the year of drought,
Nor will cease from yielding fruit.

Jeremiah 17:7-8

treebystream

 

New Year’s Goals, Wishes, Changes, etc.

01 Thursday Jan 2015

Posted by Ann Kilter in Goals

≈ 3 Comments

Tags

aspergers syndrome, autism, goals, health crisis, New Year

2014 has been a rough year, or at least the last third has been a rough year due to Ralph’s health issues.

But here we are in 2015. I am not going to make any resolutions, but here are some wishes, changes, goals, and events that I would like to see for this year.

1) Ralph to gain 10 good pounds. Not due to edema. Muscle and fat would be good.

2) Direction from all of his doctors together regarding effective measures to restore his health.

3) I would like to simplify my life.

4) I want to get rid of more stuff. Last year I took several trunk loads of stuff to Goodwill. A large, old four bedroom house with walk-in closets and a full basement can hold a lot of stuff. I am not a hoarder, just a forgetter. Out of sight, out of mind they say…and there is plenty of room here to put things out of sight.

5) I would like to see Mary get succeed at a full-time job and move toward independence. Maybe get her own apartment.

6) I would like to move to a smaller place, with fewer maintenance needs and outdoor chores. (Part of simplifying my life).

7) Patty to get into grad school and move away from home.

8) Patty to get her driver’s license, and help me with some driving chores this year before she moves away.

9) Will is in the process of trying to buy a house. I would like to see him do that.

10) Do more things together with Ralph. The last few years, as the kids graduated from college, I’ve had more “free time.” I filled up that time with choir, our local writing group, my scrapbooking group, my quilting group, and other activities. Ralph’s health problems have brought a screeching halt to all of this. I think/hope he is starting to feel better. I want to be very careful about what I add back in. I want to include something that is “us” time on a regular basis. And I did go to scrapbooking and quilting last month. Those are once a month meetings. Writing was twice a month, and choir is a big commitment (once a week and some Saturday rehearsals, plus Sunday). I need some ideas for “us” time.

What do you hope to see for 2015?

OLYMPUS DIGITAL CAMERA

On the Job Hunt Again

01 Wednesday Jan 2014

Posted by Ann Kilter in Autism, Independence, Miracles

≈ 6 Comments

Tags

asperger's, autism, developmental disability, help wanted, job, New Year

Now that the “giving” season at the homeless shelter is over, Mary is beginning her job search in earnest again. She sent out resumes a few times this fall, but now she will be sending more.

She is 27, and Goodwill and the State rehabilitation program have dropped her from their case loads. She was able, on her own, to find part-time, seasonal work with a homeless shelter, but has been unable to find a full time, regular job. She is highly valued (although not highly paid) by the homeless shelter for her skills in accounting and data entry. But her autistic features,language related learning disabilities, and inability to drive have been a barrier to regular employment.

So now that the “giving” season is over for the homeless shelter, her hours will be reduced to six hours a week. I am grateful that she has this opportunity and that she has meaningful work.

Loneliness is an issue. She has been trying to find things to do. She has been teaching herself how to draw and paint and work with chalks. We go to church. She has that social opportunity, and work is a social outlet.

I try not to fret, but that low level concern keeps niggling at the back window of my mind, trying to get in. But I need to keep in mind that the Lord has a place for Mary. She is his workmanship, his handiwork, his masterpiece created in Christ Jesus to do good works, which God prepared in advance for her to do.

******

“ For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do.” (Ephesians 2:10, the Bible, NIV)

index

 

 

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 526 other subscribers

Top Posts & Pages

  • About
  • Not Like Mom
  • Ten Things I Wish Were True
  • Throwing Off the Label
  • Mary's Wishes
  • Anxiety Overload
  • Uncertainty
  • New Year's Goals, Wishes, Changes, etc.
  • Life on a Tether
  • Battling Isolation

Finally, I’m on Twitter

My Tweets

Recent Posts

  • The Monster Wakes UP
  • So Many Advertisements, So Little Time
  • Blocking Bullies
  • Incomplete Without You – a lecture by Erik W. Carter
  • Collateral Damage
  • He’s Left The Harbor
  • Character and Determination
  • Don’t Get Me Started – A Rant About Grammar, Punctuation & Spelling
  • Exceptionally Forward
  • If Not For Autism….

Parts of my life not related to autism: annkilter2

Egg Drop Soup for Breakfast

Confession – Cheating on the Whole 30

Chocolate chili lunch

Day one completed, Day two here we come

Lidia’s mustard italian dressing.

Blogroll

  • California
  • Fever, flu linked with autism in pregnancy
  • Get Support
  • Joy In the Valley
  • Just a Thought Devotionals
  • Snagglebox – Autism Parenting Support
  • Social Stories
  • When the Enemy asks Questions about Disability
  • Wonderfully Wired – Created to be Remarkable

Recent Comments

Jerry on So Many Advertisements, So Lit…
Lilka Finley Raphael on So Many Advertisements, So Lit…
rachelcarrera on Blocking Bullies
Ann Kilter on Blocking Bullies
Ann Kilter on Blocking Bullies

Blog at WordPress.com.

Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Follow Following
    • annkilter
    • Join 489 other followers
    • Already have a WordPress.com account? Log in now.
    • annkilter
    • Customize
    • Follow Following
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...