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Tag Archives: disability

Pay Back

13 Saturday Jul 2013

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability, faith, high functioning autism, Support

≈ 8 Comments

Tags

asperger's, autism, children, disability, pay back, teaching

When I was a student at the State University, I qualified for Honors College.

Membership in the Honors College had three distinct advantages.

  1. We could register for our classes before all other undergrads, except for elite athletes.  In those days, registration meant standing in long lines to get a Key Card (an ancient computer punch card). By going first, we were able to get the classes we wanted and stand in fewer lines.
  2. The advisers for Honors College Students were full professors with high status in their departments.
  3. Honors College students were allowed to take Honors Classes, taught by the best professors on campus in small classes. My non-honors trigonometry class had 300 students; my honors psychology class on special topics had 30. A class with 30 students was a rarity on a campus with over 40,000 undergrads.

During my junior year, I took an honors humanities class, which was limited to 12 students. On the first day, we ???????????????????????????????????????assembled in an ornately decorated conference room, lined with book cases in one of the oldest buildings on campus. Our professor was late. Continue reading →

Amazing

12 Friday Jul 2013

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability, high functioning autism, Independence, Miracles, Support

≈ 8 Comments

Tags

ability, amazing, asperger's, autism, disability, overcoming

Amazing.

Yesterday, Mary and I went to an appointment to close her case at the State Rehabilitation Services office. This agency helps people with disabilities, addictions, and other barriers to employment find employment. They have funds to help with education, transportation, testing, driver’s training, bus training, etc.

When Mary graduated from high school in 2005, the State Rehabilitation Services offices took over her transition services. They paid for neuropsych testing to evaluate her skills and her ability to complete job training or college, and find employment. Continue reading →

Little Pitchers Have Big Ears

09 Tuesday Jul 2013

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, diagnosis, Disability, faith, high functioning autism, Support, Thankful, Transition issues

≈ 4 Comments

Tags

asperger's, autism, children, disability, Regrets

When Mary was five, six, seven, I  used to talk to my mother on the phone about Mary’s developmental delays. I needed my mother’s support, her empathy. I poured out my worry, sorrow and despair about Mary’s test results.

One day I realized suddenly that Mary was very quiet, listening on the other side of the door. An uneasy regret settled in the pit of my stomach. Continue reading →

Respite

06 Thursday Jun 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, faith, high functioning autism

≈ 6 Comments

Tags

asperger's, autism, disability, respite

We all need respite, a time to relax, a time to get away. We need time that is free of therapy, tests, school, etc. Ralph and I had very few opportunities to have time away when we were in the trenches of raising children with autism, so we took our time away for refreshing whenever we could find it.

Sometimes respite is an afternoon of fishing

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A walk by the lake. (I had to drive to get here)

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A project (they say handiwork like knitting or quilting reduces blood pressure)

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Or experiencing beauty…for a few minutes.

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How do you find respite?

Perseveration Perseverance

25 Friday Jan 2013

Posted by Ann Kilter in Achievement, Asperger's syndrome, Disability, Independence, Thankful

≈ 7 Comments

Tags

accomplishment, asperger's, disability, effort

Perseveration is the uncontrollable repetition of certain responses to stimuli both external and internal. Many people with brain injuries and developmental disorders exhibit perseveration. “Perseveration may also refer to the obsessive and highly selective interests of individuals on the autism spectrum” (Wikipedia).

When Mary was a young child, she repetitiously tore the pages of any book she could put her hands on. The ripping sound seemed to satisfy some need. We had to hide them for a while. We bought her board books and vinyl books, to help her enjoy books without the opportunity to destroy them. She also would repeat the same sentences verbatim regarding her cats or to dogs to anyone who would listen.

Perseveration in high functioning people on the autistic spectrum can also find expression in perseverance, a related concept. “Perseverance: steady persistence in a course of action, a purpose, a state, etc., especially in spite of difficulties, obstacles, or discouragement.” (http://dictionary.reference.com/browse/discouragement).

Mary  is perseverance personified. Her steady persistence in the face of obstacles and discouragement led to an Associates degree in accounting, and then a bachelor’s degree. She accomplished what other said was impossible.

She has severe learning disabilities, autism, and had a brain infarction at birth. Her speech impairment was in the severe category for many years; she had speech therapy well into high school. She learned to read in the eighth grade due to the persistent efforts of her wonderful teachers and her own efforts.  Among the first bookd she read independently was The Lord of the Rings. Before reading the trilogy, though, she listened to many books on tape through the Reading for the Blind program.

Her regular education teachers said it would be a waste of money and time for her to attend college. She went through another round of neuropsych testing at the age of 19. The neuropsychologist told us it would be impossible for her to succeed at college, and even if she succeeded with a few courses, she  would not be able to understand upper level courses.

Finding meaningful employment is very difficult for high functioning people on the autistic spectrum. Mary graduated from college in 2010, but has yet to find permanent employment. Still, she persists in her efforts. She volunteered at a homeless shelter for over a year using her accounting skills. This fall she had temporary full time work with them during holiday season (three months). She continues to work a few afternoons a week. She continues to persevere in her hunt for permanent employment. She has to find a job that she can get to by bus, because due to her physical limitations, the driver’s rehabilitation program has deemed her unable to drive.

She persevered and accomplished more than we could have imagined when she was placed in special education at five years of age. I was discouraged when I received the results of the neuropsychological evaluation when she was 19. She had worked so hard. But my other daughter said to me, “they can test reading and language, but they can’t test character.” Her perseveration had developed into perseverance; “especially in spite of difficulties, obstacles, or discouragement.”

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