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Tag Archives: disability

Exceptionally Forward

01 Sunday Apr 2018

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability

≈ 2 Comments

Tags

church, disability, grant writing, grants

There are times in my life when my boldness has been completely out of character for the personality I was born into.

I am currently in the process of writing a grant application for my church. Our church building is over 50 years old. First, the sanctuary was built with classrooms in the basement. Then the family center with additional classrooms and a gym was added later, at the bottom of a hill,  with a connection through the basement of the sanctuary. There was an intention to build an elevator at a later date. However, that congregation dissolved before it could be done.

We have an emotional connection to this church building. We met and were married in this church building. Our kids were all in the nursery. That church dissolved a year after we moved to a different area of the city. It was very upsetting and sad. Several small congregations occupied the building without much success after that. When we moved back to the area, we discovered that there was a new congregation there and the church parking lot was full on Sundays. So we decided to check it out. We have been attending since June and have noticed some very wonderful things about this congregation.

This church has had a strong ministry to orphans – particularly those who are medically fragile.  Many of their families have adopted.  And several others are consistently providing foster care for children in need.  This is an under-served and often neglected population.  This project would allow those with disabilities to access classrooms for Bible study and fully enter into the life of the church.  They have also partnered with Olivia’s Gift – a local home for developmentally disabled adults.  Our congregation serves there on Thursday evenings by playing music, reading to the residents, etc.  They have tried to bring the residents to our facility for Sunday services but accessibility has been a challenge.

Our church also has an African Refugee Church that meets at around 1:00 pm. There are many Chinese students who come. There is an English as a second language ministry. And several members work with New Creation Ministries doing Bible correspondence courses with prisoners.

Before we came, our church had been planning to build an elevator to the classroom areas and family center, along with a broader foyer and wider stairs. As it stands now, a person in a wheelchair or using a cane would have to go back to their car and be driven down the hill to get to the classroom area of the church. Or be carried down the stairs. These options are cumbersome and embarrassing. Many newcomers would just give up. The gospel is for everyone, not just those who can navigate the stairs.

I have witnessed church members carrying the wheelchair of a young man down the stairs.

So the pastor of the church ask if I would be willing to explore grant possibilities. I said yes. That is exceptionally forward of me.

It is not like me to go to strangers and try to convince them to hand over money even for a good cause. I was never much good at selling girl scout cookies, even though they practically sell themselves. I am not a sales person; I take after my dad in that regard. He has had many side careers over the years, none of which were successful, and some of which cost him quite a bit of money with lackluster return at best.

I was extremely shy when I went away to college. When a boy came to sit at my table with my friends, I would shake; I was so nervous. I wish I had been braver when I was in college. Maybe I would have been able to raise money from organizations to attend a semester in England. Nah. I would have been shaking in my boots.

However, there have been moments in my life that defy my natural tendencies.

After I graduated from college, I decided to attend this church which was halfway between my job and my parents’ house because the services were earlier. The first Sunday, my husband’s friend introduced himself to me, and then introduced me to my future husband. After church, the crowd was so thick that we were stuck at the back, and had to talk to each other until the crowd dispersed. He was shy. So was I. But here is the exceptionally forward part. That Wednesday night, this shy person went to prayer meeting and noticed that he was sitting alone. By himself. I inexplicably walked up to him and asked if the seat next to him was empty. He said yes. I sat down. He didn’t look at me the entire meeting. But afterward we went out for cokes at the local baptist college. (There wasn’t much available at that time near the church). And the rest, as they say, is history.

After our kids were placed in special education, I also did some things I probably wouldn’t have done if not for autism. If not for my kids.

I went to a board meeting to speak up for the kindergarten teacher who was going to be reduced to part-time. I was shaking, but I said, looking at one of the board members who also had a son in kindergarten, “My son has special needs and is very disruptive in his classrooms. Do you think it’s a good idea to put a child like him in a class of 30 kindergartners? Or would it be less expensive to put him in a specialized class in another district.” That was exceptionally forward of me. The teacher kept her full time job…and was an excellent teacher to my son.

I spoke at public comment sessions for special education, I went to conferences. I spoke to rooms full of day care providers on taking care of children with special needs. I spoke to college students in child development classes regarding what it was like to raise a child with autism.

I didn’t know what was going to happen. But I did it anyway. For the kids. And by the grace and power of God, who helped me speak to groups of people.

So I am feeling like this venture of writing for grants is also exceptionally forward of me. But it is for others.   And I am having a bit of writer’s block about it. But I have been collecting the attachments. And writing out my thoughts. Hoping to come up with a theme to make our request more powerful. Would you pray for me in this.

Ann

 

 

A Job Achieved

18 Sunday Jan 2015

Posted by Ann Kilter in Autism

≈ 9 Comments

Tags

asperger's, autism, disability, employment, joy, you're hired

Today Mary received a job offer/acceptance letter from the company that sponsored her training to become a certified computer technician for a government helpline. She begins six weeks of paid training at the beginning of February.

In April while we were eating lunch at Steak and Shake, Mary told me that she had signed up for computer certification course to qualify for a high tech computer helpline job. (https://annkilter.com/2014/04/07/marys-wishes/).

At that lunch, Mary told me that she was giving up on getting a job in accounting and was going to try something else. She had graduated in 2010 with a bachelor’s degree in accounting, and had not found a full time job.

So this summer and fall, she took a 15 week course for computer certification. I took her to her class for 12 weeks every Monday and Wednesday evening. Then Ralph ended up in the hospital with a bowel obstruction. All of a sudden I couldn’t take her to her class. The building is an hour bus ride from our home. My plans for providing her with transportation fell apart. I didn’t know what to do. I cried out to God.

Then one of the gals in my Sunday School class took charge and arranged rides for Mary during the last three weeks of her course. She also arranged transportation so that Patty could get to her TA job at a local college. I cannot begin to tell you what a blessing this was to our family and especially to Mary and Patty.

Mary passed the certification test on the first try.

She had to get security clearance because this job is for a government contractor. And she starts the beginning of February with six weeks of paid training. Then she will be a Tier I Help Desk Technician. She will be paid a living wage, with health benefits. God’s provision is wonderful in the midst of trials.

I told Mary that the events of this fall demonstrates that we cannot be depended on to meet her needs. I pray that I will be able to take her to her job, and maybe if Ralph recovers enough, he can retire and provide transportation, but there are no guarantees. She may have to make arrangements to live on her own and find her own transportation (by bus most likely) sooner than we had planned. Maybe we will move to a two bedroom apartment closer to her job by bus and she can live with us for a few more years.

Still, she received the email with Job offer/acceptance letter while we were out shopping today. As we were driving home, she said that she had spent the last two hours in a state of pure happiness.

You're hired

Hope

04 Monday Aug 2014

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, Independence

≈ 7 Comments

Tags

asperger's, autism, disability, hope, job training

This building looks like hope to me.

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After I dropped Mary off for her class last Wednesday, I sat in my car and watched some of her classmates go in. The rear door of the van near the door popped open, a ramp was lowered by an unseen force, and a motorized wheelchair  appeared, the operator quickly making progress toward the entrance. Another young woman got off the Go Bus, and with her white cane walked to the door. Adults of all ages filed in, some with walkers, some with canes, and some with no visible signs of disability. Although I have always said that no one would know that Mary had a disability until she starts talking.

All of these adults have a substantial, documented disability. All of them also had to pass a series of aptitude tests and an interview to get into the program. All of them had to have an extended period of looking for work with no success. They are taking a course for some sort of computer certification. At the end of the course, they will have to take a certification test. If they pass, they will then interview for work at a help desk for a call center operated by a government contractor.

The government contractor hires people with disabilities. It may be required to do so, and there are probably substantial incentives.

In this state, there are incentives for private employers to give people with disabilities a chance. For a period of time, a substantial portion of their wages is paid by the state. Yet, the unemployment rate for intelligent adults with disabilities is very high. Many times the rate of unemployment for the general population.

They want to work. They want to have purpose, to be independent, to make their own money. So the government has stepped in to provide both training and an opportunity for them.

This week, they will begin building a computer from scratch. I have suggested to Mary that she take one of her old computers, open it up and study the parts in three dimensions. She does the home work. She knows what it takes to pass a class.

This group had to be extra patient, as the teacher who was supposed to teach them left for another job. They had to wait another three months to get in. Some of them won’t make it, but they have hope.

And hope is a precious thing.

 

“Hope” is the thing with feathers –

That perches in the soul –

And sings the tune without the words –
And never stops – at all -” Emily Dickinsin

World Autism Day – Going Beyond Awareness

03 Thursday Apr 2014

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, high functioning autism, Independence

≈ 5 Comments

Tags

asperger's syndrome, autism, autism awareness, disability, going beyond

Tuesday was World Autism Awareness Day. The color is blue.

Do more than be aware.

Hire a person with autism.

Befriend a person with autism. Will’s first friend in fifth grade meant the world to him, and to us. Many befriended him in high school and in the church youth group. Mary had more difficulty making friends.

Befriend their parents; having a child with autism can be very isolating. Befriend their siblings.

Support autism research and autism support groups.

Provide respite if you can, or a meal. Raising children with autism is exhausting and at times, lonely.

Maybe they ought to change the name to World Autism ACTION day.

Courage is Contagious

31 Monday Mar 2014

Posted by Ann Kilter in Asperger's syndrome, Autism, diagnosis, Disability, high functioning autism, Support

≈ 5 Comments

Tags

ASD, aspergers's, autism, Autistic spectrum disorder, courage, disability

Courage.

Some days, some months, some years, it takes courage to get out of bed and do the job of raising our children with special needs.

The Merriam Webster Dictionary defines courage as “mental or moral strength to venture, persevere, and withstand danger, fear, or difficulty.”

That pretty much sums it up.

Some days it takes courage just to get dressed, get our kids dressed, and get everyone where they need to go. Sometimes it takes courage to face special education committees to advocate for your child. Sometimes takes courage to advocate for our kids to the youth group leader, Sunday school teachers, summer camp leaders, neighbors, family, school, etc. Etc. Etc.

Sometimes it takes courage when a day has been a complete and utter mess, exhausting everyone, to get up the next day and start again.

But, when you live your life with courage, others are encouraged.

When my children were young, sometimes tears would slip down my cheeks when discussing my children’s difficulties. I am sometimes an overly emotional person. I can’t always keep smiling in the face of difficulties. Actually, I can rarely keep smiling in the face of difficulties. That’s not me. During these meetings sometimes my kids’ teacher consultant or social worker would tell me that they would bring me up as an example to other parents. I didn’t really believe them. I thought they were just saying that because of their discomfort with my emotions.

I was reminded of those meetings when I visited with my parents at my brother’s house this weekend. My sister also showed up from the other side of the state. She is a nurse, with wildly varying hours, so it is not easy to see her, or even talk to her on the phone these days. (She ended up having to leave early because she is on call for two weeks). While we were talking about her youngest son, she mentioned that she knew how to advocate for him because of our many conversations when my kids were young and watching how I handled my kids. She told me that he has some autistic features. “He has autism?” I said. She nodded. Thinking back on it, I can see it in him. He is in his third year of college planning to go into computer programming. He is on the high end of the spectrum, so they didn’t realize what they were dealing with until much later in his education.

My courage encouraged her. Your courage will encourage others…even if you can’t see how.

courage-to-continue-mcounts

 

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