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Tag Archives: crisis

A Sudden Storm

06 Thursday Nov 2014

Posted by Ann Kilter in Health Crisis

≈ 20 Comments

Tags

asperger's, autism, Be prepared, crisis, Emergency, Hospital

Two weeks ago, Ralph woke me up at 4:00 a.m.

“Ann, I have to go to the hospital,” he said. “I have been having awful cramps all night long. I let you sleep as long as I could, but I can’t stand it any more.”

I got out of bed and put on some clothes, half awake. He went to sit on the toilet, where he suffered more cramps, but made no progress. He was in so much pain that I had to help him put on his shoes.

“Maybe you need to go in an ambulance,” I said.

“No”

“Are you sure we shouldn’t call an ambulance?”

“No, I can make it down the stairs.”

I woke Patty up and told her that I was taking Ralph to the hospital, and to tell Mary when she woke up.

I went out to the car and threw my purse, my Kindle and my crochet bag in the back seat. Just two weeks before we had gone to the hospital in the late evening for IV fluids because he had become so dehydrated from a water pill, along with five days of vomiting from a stomach bug. We were in the emergency room for five hours and they discharged him. I also grabbed a Kashi bar and put it in my purse. This time I was prepared for a boring stay in the ER.

Then I went back in, waited for Ralph, held the door for him as he came out to the front porch and locked the door. I helped him down the stairs and out to the car.

At 4:45 in the morning, the streets were deserted. We were quiet most of the trip. As we neared the hospital, I said, “They’ll probably have us stay for just a few hours, and then send us home. It’ll be like last time.” He grimaced in pain, but didn’t reply. It sounded stupid to my own ears.

I pulled up in front of the Emergency entrance.  The attendant saw me helping Ralph out of the car and quickly brought out a wheel chair. He said, “You can park your car over there,” and motioned to the Emergency parking lot.

After I parked the car, they brought us back to a room, and I helped him undress and get into a hospital gown. Nurses, Physician assistants, doctors came in and asked him questions. The first question after the introduction was always, “Would you tell me your name and your birth date,” after which they checked his wrist band. Then they asked him how he was feeling, when it started, etc. When he couldn’t answer, I answered for him. They took his blood, started him on IV fluids, and started him on morphine.

And at the end of each encounter they asked, “Do you have any questions?” I was never able to come up with a question. Maybe they gave us just enough information. Maybe we knew we had to wait for the results of the x-rays, the CT scan, the blood tests. Maybe I was bewildered. I didn’t know what to ask. I didn’t know what I should ask.

After the CT scan results came back, the nurse told us that the surgeons would be talking to us in a few minutes. Surgeons.

Not too long after this, a young doctor came into our room.

“We’re going to admit you,” he said to Ralph. “The CT scan showed a bowel obstruction. We will try to to treat it conservatively. Keep you for three to five days, and see if it will work its way out. Or you might have to have surgery. Depending on how busy the hospital is, you will be admitted to either a room or will be boarded in the emergency room. The hospital is very busy right now so you’ll probably be boarded, but it is the same thing.”

“You will be admitting him?” I said. “Not for observation. It’s a matter of what our insurance, you know,” my voice trailing off. I had heard there was a big difference between being held for observation and  being admitted. The bills had started to trickle in for our visit to the emergency room two weeks earlier, and I found myself counting the cost, chastising myself for it at the same time. Not the time, I thought. Not the time to be thinking about money.

“Yes, he will be admitted, not held for observation,” the doctor said. “In a few minutes you’ll be moved to another location in the hospital.”

He left us, and a few minutes later, a physician’s assistant came in, took Ralph’s IV bag off the hook and attached it to the bed. He handed me a plastic bag for Ralph’s clothes. The PA put Ralph’s shoes on the bed, and I picked up the bag of clothes, my crochet bag, put my Kindle in my purse, and followed Ralph up to the cancer ward.

Why hadn’t I thought to bring a Kleenex with me?

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Job troubles

10 Tuesday Sep 2013

Posted by Ann Kilter in Asperger's syndrome, Autism

≈ 4 Comments

Tags

asperger's, autism, crisis, faith, unemployment

Ralph just received his 30-day warning last night. He is going to work today on high anxiety. He is three weeks shy of his 62nd birthday. He could collect Social Security, but his job carries the insurance for all of us. His company was bought out by a large corporation, and his new supervisor has had it for him since June. They forced his old supervisor out, along with many long-term employees.

Patty is in a full blown panic as she is beginning her senior year of college and is afraid that she will have to drop out, both due to insurance and finances (although this semester is paid up, and she has money in her account for next semester as well).

I am just trying to keep it together as we face an impending crisis. This may be a blessing in disguise, as Ralph has been struggling to keep going with the miserable working atmosphere, both physical and mental at his job.

Will has offered to help us out. And he will, I know. He is that kind of adult.

Emotional Meltdowns

30 Sunday Jun 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, Support

≈ 14 Comments

Tags

ASD, asperger's, autism, crisis, support

Will called tonight because he was very upset. His Wi-fi thing-a-ma-gig broke down. This component is a necessity because part of his work at the computer corporation is done at home. One of the projects he is working on is going “live” this weekend. So it is an understandable crisis.

He needed to call home to help him calm down and talk through his options. Continue reading →

Our Personal Problems

27 Saturday Apr 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, high functioning autism, Independence

≈ 5 Comments

Tags

asperger's, autism, crisis, sickness and health

Six weeks ago, the ulcer on Ralph’s leg reopened. This was a deep open wound a little larger than a quarter. Ralph called his doctor and got in the next day. Two days later, he was treated at a wound clinic. It was the beginning of what is likely to be several months of weekly visits to the wound clinic. Painful and expensive visits.

We’ve been down this road before. In the fall of 2005, it started with a small scratch on his leg, which kept developing into a larger and larger sore. Our family physician finally sent him to a wound clinic.

Just when we thought it was healing up, it would open back up the next week, and stay large. This cycle repeated many times. Ralph was frustrated. The doctors were frustrated.It was so discouraging.  The wound did not heal until the fall of 2007.

The pain and discomfort limited our life. Ralph pushed himself to go to work. He pushed himself to take the kids to college and to high school when I couldn’t do it. But if it wasn’t necessary, we didn’t do it. We didn’t go away for weekends. We stopped going camping. If we went to a festival or a fair, Ralph stayed home. Ralph suffered the pain, and I watched him suffer and there was nothing I could do to make it heal faster. We were both discouraged.

But, we gained two important insights from this period in our lives.

1) The work of preparing our kids for independence and supporting themselves gained new urgency and motivation.

2) Despite our difficulties, we needed to actively plan for some sort of respite, even if only for a few hours. I began to plan mini vacations; that is, in my mind I began to think of a vacation in terms of a few hours. We began going to plays, musicals, and concerts. It was a relief to have something to look forward to. And then it was fun to actually enjoy the “vacation.”

I bring this up not because I want others to feel sorry for us; but because I think it is so important for us, the parents of kids with special needs, to begin to prepare our kids for the future when they cannot depend on us. These times of low grade crisis have in the long run helped Will, Mary, and Patty to become more independent, to depend on themselves, each other, and other people. Indeed sometimes, we have needed and received their help.

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