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Tag Archives: ASD

Courage is Contagious

31 Monday Mar 2014

Posted by Ann Kilter in Asperger's syndrome, Autism, diagnosis, Disability, high functioning autism, Support

≈ 5 Comments

Tags

ASD, aspergers's, autism, Autistic spectrum disorder, courage, disability

Courage.

Some days, some months, some years, it takes courage to get out of bed and do the job of raising our children with special needs.

The Merriam Webster Dictionary defines courage as “mental or moral strength to venture, persevere, and withstand danger, fear, or difficulty.”

That pretty much sums it up.

Some days it takes courage just to get dressed, get our kids dressed, and get everyone where they need to go. Sometimes it takes courage to face special education committees to advocate for your child. Sometimes takes courage to advocate for our kids to the youth group leader, Sunday school teachers, summer camp leaders, neighbors, family, school, etc. Etc. Etc.

Sometimes it takes courage when a day has been a complete and utter mess, exhausting everyone, to get up the next day and start again.

But, when you live your life with courage, others are encouraged.

When my children were young, sometimes tears would slip down my cheeks when discussing my children’s difficulties. I am sometimes an overly emotional person. I can’t always keep smiling in the face of difficulties. Actually, I can rarely keep smiling in the face of difficulties. That’s not me. During these meetings sometimes my kids’ teacher consultant or social worker would tell me that they would bring me up as an example to other parents. I didn’t really believe them. I thought they were just saying that because of their discomfort with my emotions.

I was reminded of those meetings when I visited with my parents at my brother’s house this weekend. My sister also showed up from the other side of the state. She is a nurse, with wildly varying hours, so it is not easy to see her, or even talk to her on the phone these days. (She ended up having to leave early because she is on call for two weeks). While we were talking about her youngest son, she mentioned that she knew how to advocate for him because of our many conversations when my kids were young and watching how I handled my kids. She told me that he has some autistic features. “He has autism?” I said. She nodded. Thinking back on it, I can see it in him. He is in his third year of college planning to go into computer programming. He is on the high end of the spectrum, so they didn’t realize what they were dealing with until much later in his education.

My courage encouraged her. Your courage will encourage others…even if you can’t see how.

courage-to-continue-mcounts

 

Evaluator in Chief

25 Thursday Jul 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, diagnosis, Tests

≈ 9 Comments

Tags

ASD, autism, Christmas program, evaluator, parenting

December 23, 1991 – an entry from my journals.

I went (to church) even though I was still sick, because I wanted to see my kids in the Christmas Program. And what I saw was a little upsetting. Instead of just enjoying my kids, I find myself constantly evaluating them – especially in comparison to other kids.

Mary was up there, she didn’t even try to sing the songs (of course she’s been gone and missed the practices). In addition to that she picked her nose. Isn’t that attractive? Will had his finger up his nose half the time, too.

But Will did not sing the songs. He kept pointing to the light in the globe and saying, above the other children’s singing, “There’s a light in there! A light in there!” And he kept turning around and around.

I am past the point where I think it’s cute. This behavior is beginning to worry me. Continue reading →

Emotional Meltdowns

30 Sunday Jun 2013

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, Support

≈ 14 Comments

Tags

ASD, asperger's, autism, crisis, support

Will called tonight because he was very upset. His Wi-fi thing-a-ma-gig broke down. This component is a necessity because part of his work at the computer corporation is done at home. One of the projects he is working on is going “live” this weekend. So it is an understandable crisis.

He needed to call home to help him calm down and talk through his options. Continue reading →

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