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Category Archives: Transition issues

The Deal

25 Thursday Sep 2014

Posted by Ann Kilter in Autism, Transition issues

≈ 11 Comments

Tags

autism, college, transportation

Tonight, Mary reminded me of a deal our family had, which made college possible.

After she finishes her computer certification course, she will have to pass a certification test. Today she sent me a flurry of emails with possible dates and times for the test. All of them involved weekdays and time slots in the middle of the day. I groaned silently at my desk. It would mean taking another day or afternoon off. I am trying to hoard my remaining days off so that I can take the three days before Thanksgiving off and get a week of vacation out of the year. I felt resentful of her use of my paid time off.

Then the guilt set in. I love Mary, I scolded myself. I should be ready to do anything to help her succeed, to help her launch her ship from the harbor. So why was I wrestling with this very important step for her?

Tonight on the way to her class, I asked her about the test and the times she had sent me. I told her that I would need to take a whole day or a half off for the test.

“No,” she said. “You can take me in the morning before work. I’ll stay there the whole day, and you can pick me up.”

“Your Dad could pick you up, you know. His work is over that way.”

She reminded me of our college deal. We drove our kids to college and picked them up every day. Pick up and drop off times had to be scheduled around our work schedule. Very rarely would we pick them up on our lunch hour. So they had to hang around campus all day, find a place to be, find things to do. None of them could drive and/or had a car during their college days.

But Mary had already figured out how she was going to get to the test while respecting my vacation time.

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(This is a picture of Will trudging off to class after being dropped off.)

When A Door Seems to Be Closing…

16 Wednesday Jul 2014

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability, Independence, Transition issues

≈ 1 Comment

Tags

asperger's, autism, job, opportunity, transition, When one door closes

Try some other doors. One of them might be unlocked.

Mary has been trying for since 2010 to find a job worthy of her degree in accounting. The door has been closing due to some seemingly significant barriers: being unable to drive, learning disability, autism, etc.

About three months ago, she told me that she was ready to try something else. (See Mary’s Wishes). She went to Goodwill and took a test for a new training program to qualify for a computer training program. She qualified, and was to start when she found out that the trainer had moved on to another job. It took three months for them to hire another teacher. Finally, she will be starting the program in about ten days. Two nights a week. The Kilter taxi service will be starting up again, but we can’t pass up this opportunity. Perhaps if we jiggle the door knob, another door will open. 🙂

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The Kilter College Taxi Service

22 Sunday Jun 2014

Posted by Ann Kilter in Achievement, Asperger's syndrome, Autism, Disability, Transition issues

≈ 3 Comments

Tags

asperger's, autism, college, driving, Kilter college taxi service

“You know what I miss since you graduated from college? I miss talking with you on the trips back and forth five days a week. Now I only have you in the car alone when we go to choir practice.” I said this to Patty on the way to choir practice last Wednesday. She agreed with me. Ralph had this same sentiment, which he expressed to Will, after Will graduated.

The Kilter College Taxi Service started in the fall of 2005, when I began taking Mary to the local community college to study accounting. I admit I took Mary to college in part because I wanted her to have something to do after graduating from high school. One of her high school teachers had said that it would be a waste of money for her to go to college. Before she started college, a neuropsychologist predicted she would not go much beyond her first year, if she went that far. Nevertheless, I kept taking her, thinking that at least it would keep her from being totally bored. I usually dropped her off at school, and Ralph usually picked her up. She went to school three to four days a week.

Two years later, in the fall of 2007, Will began attending a local Christian college. His college had a five day a week schedule.

Two years after that, Patty started college. During that year, we were driving three kids to three different colleges. During one stretch that year, I was dropping one or more of them off at 7:45 a.m. at one school, and picking another up at 9:30 p.m. Mary had night classes four days that semester. Honestly, I look back and don’t know how we did it…just by the grace of God.

Some statistics:

1) 5 cars have been involved in the taxi service: 1998 Ford Taurus, 2000 Mercury Sable, 2002 Chrysler Town & Country, 2004 Cadillac De Ville, and a 2013 Chrysler 200 (pictured below). The only car that left us hanging was the Chrysler Town & Country. The week before Patty’s final exams in 2013, it died. We ended up having to rent car to get us through the week.

2) We didn’t leave anyone stranded (for long), nor did we lose anyone in those nine years. Although there were a few times when I would walk in the door home from work, and Ralph would say, “Where’s Mary?” or “Did you forget someone?” Oops. And I would have to turn around and get them, or he would say, “You sit down. I’ll go get them.” Or vice versa.

3) On school days, we used at least 70% more gas than we would have, had we not been driving our kids to college. Some days, especially during the first winter of driving my son to college, I wondered if it would have been less expensive to have him live on campus. But when I did the math, and even when gas was $4.19 a gallon, we still saved more than half of what we would have spent having him live on campus.

4) On school days, I spent an average of an extra 90 minutes per day driving kids to or from college. Every trip was an opportunity to joke around, talk, have deep discussions about their classes or other issues of the day. It was an extra opportunity to influence our kids, to teach, to know them as young adults. It was a chance to continue honing social skills.  Our conversations weren’t always interesting. Sometimes, I let them know in the process of going on and on about computer programming (Will), tax fraud (Mary), or managerial economics (Patty), they had lost me. They told me they felt the same way when I started talking about Medicare Set-Asides (in workers’ compensation).

We started driving our kids to college because Mary and Will could not drive due to their autism. In our family, autism has affected hand/eye coordination and motor skills. As a result, many skills of a physical nature have come more slowly, if at all. According to the Drivers Rehabilitation Program in our town, Mary is not allowed to learn to drive. She has made two attempts a couple of years apart with them, and the Secretary of State has been prohibited from issuing her a learning permit. Will learned to drive with the Drivers Rehabilitation Program during his junior year of college. He received his driver’s license when he was 22. That was a happy day. Patty, although capable, still does not have a license, but this will change soon. Like many millennials,  she is fearful of driving. I guess I have let it go because we still only have two cars, and the insurance costs will go up. And maybe it was easier than fighting her on it. Still, getting the license and driving will be the next step in her independence.

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I mentioned in an earlier post that the Kilter College Taxi Service had ceased operation because our third child, Patty, had received her bachelor’s degree. We were done, I said. That is not entirely true. She has a few more classes to take at the Community College (French), and some tasks to complete (getting her drivers’ license). But I expect Patty to share in the driving chores until she goes off to grad school. Still, I feel at loose ends. Although I have had summers off from driving to college daily, I am now facing a fall where I don’t have to take anyone to college every day. My friends at work asked me what I was going to do with all my extra time. I have toyed with the idea of finding another student to take to college. It’s probably time to move on. I am just going through a little adjustment anxiety.

 

Mary’s Wishes

07 Monday Apr 2014

Posted by Ann Kilter in Asperger's syndrome, Autism, Disability, high functioning autism, Independence, Transition issues

≈ 20 Comments

Tags

independence, independent living, transition

The receptionist at the law firm where I work told me that she will have no children at home within the next six months. Her daughter with the baby is interviewing for special housing, her son is moving in with friends in May, and her youngest is moving into her own apartment to attend college in August. What a change that will be for her and her husband. The empty nest may come upon Ralph and me sooner than I think. Will is already gone. Patty plans to leave in a year or so after graduation this spring to go on to graduate school. And Mary wishes to leave as well.

On Saturday, Mary went grocery shopping with me. Usually, when I drag one of the girls out to the grocery store, we also go out to eat. I started taking my kids out individually for lunch or breakfast on a rotating basis when they were in their early teens, so that we could talk without the other ones butting in. Both Will and Patty were talkers. At first, getting Mary to carry on a conversation was halting, difficult. She would not look at me. Her voice was so soft, I could barely hear her.

At Steak and Shake, Mary informed me that she was looking forward to moving to her own apartment. I said that she would need an apartment that was within a short distance to a bus stop and shopping. I suggested that she might want to live with her brother, Will. She shook her head. She doesn’t want to live with Will, she wants to do what Will has done, have her own apartment and her own life.

In order to move away, she said she needs to get a steady job. Then she told me that she was going to an interview at Goodwill on Monday. They have a training program for a high tech call center. Surprise! I don’t know if she has the ability to learn C++, but she does keep the computers running around here.

After we came home, I told Ralph what Mary had said. I started looking on the computer at apartments in the area. Talking about where Mary would shop, how she would get around and how she would get to work. He said, “Wait, one step at a time. You never know, she might get married.”

“I can’t wait,” I said. “How will she get groceries, go to the dentist, go to the doctor. We have to think about these things. Plan for her.” But this isn’t my job or my place. I have to let go to the extent that we can.

The truth is, Mary is making plans, taking steps to make her wishes come true. She has been planning for years. Even though she can’t drive, she is going to ride the bus to her interview tomorrow and back. She can get around.

Mary can take care of herself, in many ways better than her brother could when he moved into his apartment. She does laundry, cleans house, and cooks. She has accepted the fact that she cannot drive, so she plans to get around on her own. We have insisted that she try to find a job which is easily reachable by bus. As tempting as it is to say we would drive her to job inaccessible by bus, her independence is dependent on the bus.

Living Room

Above is a picture of Will’s apartment after he moved in. To say his furniture was sparse is an understatement. But Mary has her own bed, a recliner, desk, office chair, TV, bookcases. I would encourage her to buy dressers, lamps, etc.

Mary is vulnerable, and that is one of my fears. But I must let her go at some point, whether it is to supported living or totally independent living.

A year or two ago, I dreamed that Mary had moved into her own apartment, and I walked through her apartment looking at her cupboards to make sure she had enough food. I opened the refrigerator door to peak in, to see how the food supply was. I went through the same process with Will after he moved. After a while, I stopped prying into his cupboards, except now to ask where he keeps the sugar or coffee filters.

My wishes are that she would be safe, and able to take care of herself. Mary’s wishes are to be independent, have a job, make her own life. I need to step back and let her live her life. To leave the harbor, so to speak. That is what ships are for, even for Mary.

Handles, Wings, and the Special Needs Child.

29 Saturday Mar 2014

Posted by Ann Kilter in Transition issues

≈ 1 Comment

Tags

growing up, special needs, transition

Transition is the long term process of changing handles to wings for our children. Set this expectation in your mind: it will take longer, with many fits and starts. I recommend the post below by my writer, friend, G. Allen Barrett, poet, writer, and father. I so enjoy his sway with words. In each of our families, we share the experience of parenting special needs children.

G. Allen Barrett Poet. Writer.

4:40a.m. I heard “handles or wings.” Not audibly, but thoughts rattled and I carried my journal to the bathroom and wrote it down. My friend Peter Dehaan commented about my blog post on writing, the one about keeping paper and pen available while sleeping. He mentioned that sometimes a thought would arrive in the middle of the night and when he revisited it the next morning he was clueless as to why he wrote it down.

I imagined an angel with handles where wings would usually be found. Maybe my guardian angel could be easily moved. Just grab ahold matie, and take control.

Or maybe the angel is like a G.I. Joe I had when I was a child, the handles were where I would attach a parachute and throw him off the garage roof.

Maybe when God created angels he gave them a choice at the end of the…

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