We have so many questions that we haven’t asked yet.
I know I shouldn’t go on the internet, but it’s almost irresistible.
Information on prognosis is depressing. The kind of cancer Ralph has is MDS (RAEB-1), with abnormalities in red blood cells, neutrophils, and playelets.The prognosis I have found is two years to live without a stem cell transplant, and four years with it. But I need to ask his treating doctors about that. His case may be different.
When my son Will was diagnosed with autism in 1994, the information was very depressing, even for extremely high functioning children. Yet, now he is a computer programmer for a very large company, has his own house, and flies all over the country.
At our first appointment with the doctor, we just heard what she said, but we didn’t ask enough questions.
the jay train said:
Ann Kilter said:
Ann, I know what you mean. We had to learn a LOT about Lymphoma so we would know what to ask, and be able to talk intelligently with the doctor. My husband also had to learn the dosages of chemo, and watch carefully that the right amounts were being used when I got my chemo treatments. It paid off…found a mistake one time. Our hearts go out to you, and you are and will continue to be in our prayers. Here’s something I wrote when I found out I had Non-Hodgkin’s Lymphoma in 1997.
By: L. Carole Scott 12-21-98
Being told you have Lymphoma makes you feel like bugs are loose inside you…creeping and crawling where they should not be…
They lie dormant and all seems well while you
“watch and wait” as the doctor says you must do.
Then suddenly, they’re on the move again–wreaking havoc. Their mission, to destroy your body–God’s temple.
The cells of cancer, like marching ants–militant in nature–form battalions in order to conquer all in their grasp.
And then there’s the chemo–like bug spray, deadly…
lethal…chasing the invaders.
The cancer cells, like some insects, either die or grow immune–while your life hangs in the balance!
(Praise God, HE watched me being formed in utter seclusion (Psalm 139) and knows all my inner parts. He alone knows every lymph node and is in command of my life and times. HE will establish the work of my hands! Greater is He that is in me than he that is in the world!) That was 18 years ago, and 11 years since the last onslaught! PTL! You may share this if you want to!
Ann Kilter said:
Wonderful thoughts. I am encouraged that you made it through twice! Ralph seems calmer than I am. At other times worried.
You are such an inspiration in spite of it all- and perhaps because of it.