Tags
asperger's, autism, conundrum, disability, equine, equine therapy, fraud, ostracize, Sophie's choice, therapeutic horseback, therapy
When we began going to autism workshops and conferences, we found ourselves the subject of many sales pitches for the newest therapies that would produce miracles.
We also were sometimes pressured by parents in the local Autism Society to make a commitment to purchase a certain therapist’s services in order to “bring her to our community.” Enough parents had to participate in order to pay for her services to make it worth her while to come. Auditory integration training would cost $2,000 for a set number of therapy sessions. Music therapy was $100 an hour.
There were two problems with this.
First, we could not afford it. We were just scraping by as it was. Several options were presented – beg the money from our relatives, put it on a credit card, get a bank loan or a second mortgage on the house.
Second, which one of our children would we choose? Choosing them all was out of the question.Should we choose our gifted, disruptive autistic son or our quiet, multiply learning disabled autistic oldest daughter? Or our youngest, questionably autistic daughter? An impossible choice.
Therefore, we said no. As result, we were ostracized for not “participating for the good of all the children in the area.”
Instead, we chose to invent our own therapies out of ordinary life.
We listened to classical music in the house for our music therapy.
We were blessed by a piano teacher who was willing to try to teach my son. He enjoyed music, singing in tune with gusto. After a year, she noted that he had an aptitude for music. She taught him for 12 years. After that year, we ask her to teach our oldest daughter in order to improve her finger strength and coordination. I thought it might help her learn to hold a pencil. My youngest daughter wanted to do what her brother and sister did. This cost $10 a week per child – a pay as you go therapy.
We chose to take advantage of community subsidized speech and occupational therapy offered by Easter Seals and the Rehabilitation Hospital. These required small payments times three.
In spite of extended and persevering effort, learning to ride a bike did not happen. Instead, we found equestrian therapy – offered at a discount due to the generous donations of the community – also paying as we went. Our children were unable to ride a bike due to balance issues, but they were able to eventually learn to ride a horse independently.
These choices stretched us financially, sometimes heavily, but we made the sacrifices on a weekly, monthly basis. Choices of “miracle therapies” with little proof of efficacy would have bankrupted us.
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Learn more about the benefits of equine therapy here: http://www.autismkey.com/equine-therapy-for-autism/
Actually, there was no way that we could have afforded the expensive therapies of our day, even for one child. (1990s and 2000s). Auditory integration training required more than one set of sessions (at $2,000 a go). My husband made enough money to keep us just above the poverty line. Daycare for three kids made working outside the home a money losing option. Also, if I mentioned special needs to possible babysitters, the openings suddenly disappeared. We couldn’t get a second mortgage for therapy, our credit rating was poor. None of our family were able or wanted to help. Some of them were very vocal in their opinions that our kids had autism at all.
It turns out that auditory integration therapy has been discredited. http://autism.about.com/od/alternativetreatmens/a/AITOverview.htm
I think parents should do everything they can to help their children. For us, we could not afford to do the expensive therapies. So we had to be creative.
It sounds like you guys did a great job with teaching your children. Therapy doesn’t always have to cost an arm and a leg. There are therapeutic options all around us. All it takes is self-discipline to do it and a little creative thinking. Plus, therapy is not ‘one size fits all’. Every child is different, and so are their needs and their learning patterns. Good job! That’s great parenting.
Sometimes a closed door can be a good thing. If I had spent our resources on auditory integration therapy (or the half dozen other ones we were offered), we might not have thought to give my son piano lessons, and he might have missed out on marching band in high school, and symphonic band in college.
That is very true! What wonderful opportunities he was given. That’s a great perspective to have.
Its lovely to see you chose equestrian therapies, this is the topic i am writing about for my university dissertation this year (as i am a keen horse rider) and already through my research i have found that is a vastly under appreciated form of therapy! I wish you and your family all the best.
It is a wonderful kind of therapy, and good for many kinds of special needs. Our kids also took part in “horse camp” during the summer. One week of riding, washing horses, feeding horses, mucking stalls, and instruction. They were not spared from the hardwork of taking care of horses. It was wonderful. Just writing these blog posts brings back memories of things I forgot.
We have an equestrian therapy program in the local area. I have a couple of friends with disabilities who benefited greatly from the program. Just the patience of the horse can often be a great comfort.
Like dogs, horses don’t care if can’t speak clearly. It’s great for balance as well.
Hi, Ann. I enjoyed your post on creative therapies and think a lot of people might be encouraged from reading it. In my blog in September I’m focusing on different therapies and I would really like to share “Conundrum” with my readers. Do you think that would be okay? I’d like to post it on my site (margaretjeanadam.com) introducing you and giving you full credit for the column. Please let me know!
I would be delighted if you shared “Conundrum” on your blog (with a link back, as well). It can be overwhelming to raise kids with autism, and expensive. Some of the creative lower cost stuff we can do is fun as well. why not take something that other children do, like piano lessons or dance lessons, and consider them therapy?
Perfect. I agree. Sharing resources and ideas is the best, no matter what the challenge is that we are facing. Thanks, Ann.
Ann, your blog will run from Sept 9th through the 15th on MargaretJeanAdam.com.
Thank you so much. I know my followers will appreciate your take on therapies, and enjoy meeting you!
Ann, I agree wholeheartedly! Sometimes a closed door IS a good thing. I am paying by the month to learn how to facilitate equine therapy sessions. Some certification programs did not want to do that and demanded the $ up front. As a result, I landed in Colorado, taking my classes in a work/study program with the most remarkable women. I knew there had to be another way…just like you did. You sound like another remarkable woman. Bravo!!!
Those who choose equine therapy as a calling bless the people they work with. It’s wonderful to give someone who can’t walk, freedom. Some who talk very little, a voice. And your work blesses the parents and caregivers as well. Thank you.
There is an OT (Angie Voss-www.asensorylife.com) that I follow that writes quite a bit about Sensory Processing Disorder. While she shares ideas for specific therapeutic strategies, her biggest piece of advice to parents is to allow children opportunities to play and explore. In her words, “The brain responds best to purposeful and meaningful activity.”
By eschewing those expensive, faddish therapies, you may have offended other parents, but you probably did the best thing possible for your kids. Great post
OT was a big part of our life. Our therapists sent home lots of “homework” for our kids. And suggested activities like swimming lessons (which we received at the rehabilitation hospital) and therapeutic horseback riding. I think they benefitted greatly from just being allowed to develop more slowly.