I was often told that I must be a special person to have been entrusted by God with special children. I thought, but did not say out loud, that I did not want to be a special parent. I felt that really, God, perhaps, had picked the wrong person for this job. I told him that, too, to his face, so to speak. God is big enough to be questioned. He could take it.
I knew these people, though misguided, were trying to say something to comfort me. I knew that they didn’t know what to say.
Sometimes people also treated my husband and I as if we were a little special, too. This, despite the fact that we both have bachelors degrees. I had a major in English and nearly a double major in linguistics. I still had to keep tellingl my kids’ speech therapists that I had comprehensive knowledge about phonemes, phonology, morphology, and syntax. Sometimes people in our church and our relatives treated us as though we were a little special, too.
But the truth is, by God’s grace and help, we became the parents our children needed. God didn’t change the diagnosis of autism. He changed us.
I know that intervention was the key to helping my other daughter that had PDD-NOS at first than was diagnosed with full Autism later.
My oldest daughter did not receive early intervention due in part to our lack of knowledge and due in part to our doctor who said to me after she was placed in Special ed, that “Frankly, I don’t believe in early intervention.” I was furious for years.